Another good night and awesome day.

Happy birthday wife! Continue reading “December 19th 2016” →

RT had another amazing night. Less crying than the prior night,  with more sleeping.

Took the bottle at midnight and 6am, he slept through the 3am g tube feeding. Continue reading “December 18th 2016” →

Finding I have to try and sleep during the night whenever RT is or I get none. About 2 hours toral last night, short nap this morning.

He makes some crazy squeaks in his sleep like he’s angry and heart rate climbs but then back to calm sleep if you don’t do anything.  Continue reading “December 17th 2016” →

Good night with RT, did everything myself.
A could times where he was too frustrated and wanted real food not his binky just difficult to calm him. Obvious he was hungry before it was time.

0900 another bottle feeding with speech present. Continue reading “December 16 2016” →

Another amazing day.

Doctors moved up our discharge date to the 22nd. Now we have a date if swallow study goes well and eye exam looks good  Continue reading “December 15th 2016” →

Day much like yesterday.

He pooped last night! No suppository! So happy he has been pooping now that his hernia has been repaired! Keep it going!

Continue reading “December 14th 2016” →

Went up to hospital early this morning.  RT was wide awake and yelling but not really angry just waiting on someone to come in and see why he was yelling. Goofy boy.

Diaper change.

Speech therapy arrives.  Feeding time.   Continue reading “December 13th 2016” →

Ongoing discussion of when we will potentially be discharged.

The Dr. Says potentially in a weekish… Woah that is soon. Continue reading “December 12 2016 post #200!” →

Photos inside!

Continue reading “December 12th 2016” →

Woke up to power being out this morning.  I went back to sleep and mom went up to the picu to pump and check on RT.

I headed up slightly later than normal.  Continue reading “December 11th 2016” →