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A journey of having a son born at 23 weeks 6 days.

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November 18th 2016

On November 18, 2016November 19, 2016 By SMCLeave a comment

Head up early to get up to the picu before his next CPAP trial this morning.

We walk in,  he is on 21%, trial already started. About an hour earlier than planned.

Nurse today we have not had.  Continue reading “November 18th 2016” →

November 17th 2016

On November 18, 2016November 18, 2016 By SMCLeave a comment

Go up to the PICU early.

RT is still on 22%!

He is 17 weeks old!

Nurse today is one we meet yesterday, but have not had.

The pool of nurses is smaller so eventually we will start having the same nurse multiple times. Continue reading “November 17th 2016” →

November 16th 2016 big move

On November 16, 2016November 17, 2016 By SMCLeave a comment

Earlier to the NICU today.

RT is on 22% oxygen!

Primary nurse.

Continue reading “November 16th 2016 big move” →

November 15th 2016

On November 16, 2016November 16, 2016 By SMCLeave a comment

Enter NICU.

Primary nurse!

25% oxygen.  Just bumped up because he was desating.

She had him on 21% for 3 hours.

Morning cares,  just pee.

Weaned to 21%. Continue reading “November 15th 2016” →

Photos inside,  Suggles and Pampering

On November 15, 2016November 16, 2016 By SMCLeave a comment

Snuggles and bath time!  Continue reading “Photos inside,  Suggles and Pampering” →

November 14th 2016

On November 14, 2016November 14, 2016 By SMCLeave a comment

Enter NICU. Another nurse we have never had.

RT is now on NAVA mode of ventilation!  The mode that uses an EDI catheter to read the signals his brain is sending to his diaphragm.  NAVA level 2.4.

He is doing good on it,  22% oxygen! Nicely done!  Continue reading “November 14th 2016” →

Born to be a 12 photos from November 12 2016

On November 14, 2016November 14, 2016 By SMCLeave a comment

Photos inside!

Continue reading “Born to be a 12 photos from November 12 2016” →

November 13 2016

On November 14, 2016November 14, 2016 By SMCLeave a comment

Came in and he was on 26% oxygen.
A nurse we have never had before in 115 days of life.
She has had a good morning so far.

Said she pointed out when assignments were made that she had never had him.  She asked for tips or recommendations, I said,  just keep doing what your doing if you’ve had a good day.

Cares. Just pee.  Continue reading “November 13 2016” →

November 12 2016

On November 12, 2016November 12, 2016 By SMCLeave a comment

Pretty good day!  Under 30% most of the day.  No changes to his vent settings.

Pooped last night! Continue reading “November 12 2016” →

November 11th 2016

On November 12, 2016November 12, 2016 By SMCLeave a comment

Happy Veterans day!

Enter NICU.

RTs due date was today. 11/11. Instead he decided he wanted to meet us early and came 7/21. If he had been more willing to stay inside a bit longer everything would have been different.

But the important thing is we are all still here. Continue reading “November 11th 2016” →

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