Good stable night.
Surgeon stopped by this morning, cleaned area, swapped gauze around G tube. Check his other dressings, everything looks good. Start feeds through G tube of clear fluid pedialite for several hours then swap to plain breast milk at 1500.
RT is happy to be getting stuff back in his belly. Continue reading “December 10th 2016”
RT is in and out of sleep.
When he wakes up he is uncomfortable but settles back down with a little comforting and his binky.
Going to spend the night by his side to make sure he stays comfy. Continue reading “Night of December 9th 2016”
1540 phone call, surgery is complete, just waiting for him to wake up and see if they can remove breathing tube!
We are waiting in his room for him. Continue reading “December 9th 2016 surgery”
Surgeon was ready at 1300, nurse was not ready to send us off until 1330. Not sure why. Transport is ready to move us.
We disconnected his spo2 monitor.
I asked if we are taking a mobile one. Continue reading “December 9th 2016 dropping him off”
RT is 20 weeks old today, 140 days old!
Happy birthday!
Arrive at Peds. Nurse we’ve had several times has a different role today but comes to check in on us anyway. Updates us on possible ENT appointment tomorrow.
Arrive at hospital early for eye exam.
He had a good night. Slept for most of it. Apparently he sleeps better in a cooler room like his parents.
Eye Drops in. Eye exam late again.
No difference between the eyes. Eye doctor has no concerns, next appointment in 2 weeks. Looks like Avastin did it’s job!
Photos inside!
Today was another good day, nurse we have had a couple times. Continue reading “December 6th 2016”
We have now lived in a hotel for 5 months straight, yikes. While unfortunate, we are glad we are here because the alternative could mean RT didn’t make it. Continue reading “December 5th 2016”
RT got a bath, and fresh nasal cannula during thenight and slept almost of the rest of the night!
Nurse we have not had. Continue reading “December 4th 2016”
Another absolutely amazing day!
Nurse is one we have not had yet.
Little RT was more stable today than yesterday if anything.
Grandma got to have more snuggling!
Preemie Pop 