Enter NICU, it’s one of the nurses that has had him a couple times!

Weight is down slightly to 1715 grams.

The nurse tells us they had another lung X-ray this morning. CPT has been discontinued because upper right lobe looks betterish. He is also now on NAVA mode of ventilation. He still has a ET tube down his throat and now has an EDI catheter too, we were on this system back in the first couple weeks of his life. The EDI catheter picks up the signals his brain is sending to his diaphragm and gives him a breath. Continue reading “September 14 2016” →

1720 grams on the board, that is 3 lb 12.7 oz. He is getting closer to that 4 lb mark!

He is at 38% oxygen! The nurse today is one of his primaries! She comments  It has been a little bit since she has seen him,  he is bigger now! Getting old RT! She tells us how last night’s nurse had him down to 33% oxygen!

Continue reading “September 13th” →

Weight in the board, 1655 Up 5 grams.

Oxygen percent still sitting at 53%.

They have a checklist out for another blood transfusion, we were guessing this would happen today after Sunday night labs. Last Sunday his red blood cell count was 29.8 that was before surgery and countless attempts at IV, picc line sticks, blood gas, and surgery. Now it is down to 26.

Continue reading “September 12 2016” →

When we went up to the NICU this morning his oxygen percent was up to 66. That is 9 percent higher than he was all day yesterday, and over the night all night the he was around 52%.

We wondered why he was needing more oxygen.  Is he building up fluid around his lungs which is a possible side effect of surgery that can take a while to present itself. Is he derecruiting lung volume again.  She says it sounds like he is breathing shallow.   Continue reading “September 11th 2016” →

When we came to the NICU this morning RT’s weight is up to 1640 grams or 3.6 lbs. A 20 gram gain since yesterday. He has been gainin weight steadily.
His heart rate is elevated at about 200 Bpm, he is angry. Mouth wide open with his sad silent screams. Continue reading “Sept 10 2016” →

0650 call from hospital, mini panic attack. Just calling and letting us know the plan to not use swedish transport team.

OK everything is ok. Deep sigh Continue reading “Sept 9th 2016” →

After surgery RT has been fairly stable. His oxygen percent needs have remained between 46-55%. We have they have been raising his feed amount about every 3 Feedings sincr the morning after his surgery at 8. He is now to full Feedings of 28cc fortified with prolactin rather than HMF.

Today he had another follow up echo cardiohram and an xray. Everything looks ok so our hospital contacted Swedish. At night rounds when the doctor came around we  we found out she spoke to the neonatologist working tonight up at sweedish

Continue reading “Sept 7 and 8 2016” →

After a long day, he is stable at 47 percent oxygen. They decided to lower his peep due to blood gas readings. From 9 down to 7.

After 2000 cares he is exhausted. Time to hopefully get some sleep for ourselves.

We love you little guy! So proud of you for doing so well through surgery! Everyone is rooting for you!