January 10 2019

Christmas was awesome, I’ll put up some pictures soon.

Today RT is having yet again another surgery, now up to 9 surgeries counting this one. Due to his dysphagia(partial paralysis of his left vocal cord) they don’t meet in the middle perfectly so it causes swallowing issues, he s has to drink thickened liquids. Drink bottle in a side laying position or else he has risk of aspiration( fluid into lungs).

As he’s getting older developmentally he wants to drink from a cup and can only drink from his straw cup with thickened fluids. If he goes to pre-school in the future if one of his friends thinks he’s being nice and shares his drink it could be potentially dangerous.

So today we’re hopefully going to at least temporarily get them to meet completely with an injection into his vocal cord to plump it up and get full closure while swallowing.

To me this is a scary operation, since we are messing with his airway. We had such a difficult time getting him off of the ventilator back when he was in hospital. Always these underlying fears.

This is an inpatient surgery to keep him overnight for observation. This will be the first time we have had to spend the night in the hospital since he was discharged on December 22 2016.

He has not been able to eat since last night so we have a hungry boy on our hands. He’s behaving really well though.

Left him with the Nurses at 923

1001 ENT Dr. is done comes to talk to us. His vocal cord is moving better than it was In the past when she watched it, when he coughed they would now completely meet. Decided no injection for now. Hope is that he will continue to regain more movement in it and outgrow the issue. Sounds like good news to me. More movement is better hope he can outgrow it.

Now we wait to get called back after he is out of recovery.

Image below is airway and vocal cords. You can See smaller vocal cord on left side. Dr was not able to get picture as they closed when he coughed but saw them meet completely at full cough