Surgeon was ready at 1300, nurse was not ready to send us off until 1330. Not sure why. Transport is ready to move us.
We disconnected his spo2 monitor.
I asked if we are taking a mobile one. Continue reading “December 9th 2016 dropping him off”
Surgeon was ready at 1300, nurse was not ready to send us off until 1330. Not sure why. Transport is ready to move us.
We disconnected his spo2 monitor.
I asked if we are taking a mobile one. Continue reading “December 9th 2016 dropping him off”
RT is 20 weeks old today, 140 days old!
Happy birthday!
Arrive at Peds. Nurse we’ve had several times has a different role today but comes to check in on us anyway. Updates us on possible ENT appointment tomorrow.
Arrive at hospital early for eye exam.
He had a good night. Slept for most of it. Apparently he sleeps better in a cooler room like his parents.
Eye Drops in. Eye exam late again.
No difference between the eyes. Eye doctor has no concerns, next appointment in 2 weeks. Looks like Avastin did it’s job!
Photos inside!
Today was another good day, nurse we have had a couple times. Continue reading “December 6th 2016”
We have now lived in a hotel for 5 months straight, yikes. While unfortunate, we are glad we are here because the alternative could mean RT didn’t make it. Continue reading “December 5th 2016”
RT got a bath, and fresh nasal cannula during thenight and slept almost of the rest of the night!
Nurse we have not had. Continue reading “December 4th 2016”
Another absolutely amazing day!
Nurse is one we have not had yet.
Little RT was more stable today than yesterday if anything.
Grandma got to have more snuggling!
Another long day but stable and impressive!
RT had a good night. Sounds like he slept for most of it, was still asleep when we arrived.
Feeds shortened to 1 hr and a 2 hour break. Continue reading “December 2nd 2016”
Good day! kiddo just does not sleep much!
Feeds shortened from 2 hours to 1.5 hours.
Grandma got to hold RT for the first time!
Nothing crazy or unusual!
Good boy, keep it up!
Another good day!
Arrive at Peds. Nurse we have never had. starts eye drops for exam. They start an hour before appointment. Good night and morning it seems. Continue reading “November 30th 2016”