RT had another amazing night. Less crying than the prior night,  with more sleeping.

Took the bottle at midnight and 6am, he slept through the 3am g tube feeding.

I got slightly more sleep, maybe a total of 3 hours.

Went to hotel at 0700 for a nap and mom took over with grandma.

Gma got to hold a bunch.

Removed RT from spo2 sensor.

He is now off all monitors!

Amazing! But makes sense since he has shown us how stable he is.

But then I am not comfortable leaving RT unattended at all. Should anything happen the nurses would never knowpotentially until it is too late. If we are in the hospital and they only take vitals once a shift and come in to do feeding once every 3 hours that is not much time with him.

Definately not leaning him unatended any more.

I discuss it with the Oncoming night nurse that has had him several times before his surgery.

I’m not comfortable leaving him unattended where no one can hear him cry or if he is having difficulty breathing.  She says there is nothing that says we can’t put him on an as spo2 sensor if we leave. Well that’s good!

We can have him monitored if we need to go do stuff.
When we go to our future home we should qualify for in home nursing, and if they arwnt there we will have a baby monitor so we could atleast hear him if not see him if we get the fancy video one,  which would be more monitoring than he would have here if not connected to anything.

I will have to go do some things over the next couple days prior to discharge. Dealing with rental car return, bank stuff,   pick up of a new vehicle from a dealership that we will drive across the country with! Going to base Seattle to deal with some emails.

Now when we pick up RT he has no wires dangling off of him! The first time ever!

Just his Gtube to be cautious of now, especially if we are venting him. Vented by taking a syringe without the plunger plugging it into his Gtube and hanging it near him elevated a few inches, so that gas can escape from his stomach and there won’t be high pressures building up. It’s not fun if it spills, inevitibly  he pushes up partially divested milk and stomach acid intubated the syringe. Which we push back in occasionally with the plunger.

Can hold him and walk about the room when he’s not being fed like a normal baby!

Amazing!

Tonight will be the first night sleeping in the same room as him without him on a monitor telling me if he is desating.

Odd that being normal feels not normal.

Sleep tight me.

Goodnight room.

Good night food pump.

Goodnight RT.