Finding I have to try and sleep during the night whenever RT is or I get none. About 2 hours toral last night, short nap this morning.

He makes some crazy squeaks in his sleep like he’s angry and heart rate climbs but then back to calm sleep if you don’t do anything. 

RT’s honorary grandparents (chaplain and spouse .) got to visit today! Glad they were able to stop by! They brought RT a cute little stuffed animal and a bag more to donate to Peds! Amazing people,  blessed to know them!

This journey really has brought us in contact with many new people and formed many new connections.

Life works in ways we will never understand.

RT pooped several times today,  two small one medium. So its good he’s pooping but now more than his norm. ..

Surgeon says nothing to be worried about with his Gtube.

Grandma got to hold a bunch!

RT slept more today.  He likes bottle feeding it helps tire him out. It’s going well! Only a few more days to practice before his swallow study!

Spending the night again.

Shorter blog for more time to sleep and caring for RT.