Another long day but stable and impressive!

RT had a good night. Sounds like he slept for most of it, was still asleep when we arrived.

Feeds shortened to 1 hr and a 2 hour break. 

Discuss with Drs about the upcoming plans. Slow and steady (hopefully.) Perhaps completely off morphine and on 30 min feeds over the weekend. Several doctors will meet next week to figure out surgery plans hernia repair and possibly G tube.

Grandma gets to hold RT again!

Oxygen weaned to 1/8 liter per min! The flow meters don’t go that low so RT gets a special size E tank and low flow meter that they never use inside the hospital, a flow meter that requires a wrench to adjust the flow, apparantly they don’t have a wrench next to the scalpel,  forceps, stethascope, larenscope, or syringe….. RT factor. It takes a while for them to find one, one of the nurses had one.

Speech therapy stops by to discuss plans for possibly trying oral feeds next week and gave us more “exercises” to teach the brain and body about feeding.

Occupational therapist stops by. Not at the right time for tummy time now that he’s getting bolus feeds. Gives us more stretches to do. He would have been doing flips inside mom for the past 4 months but instead he’s been mainly flat, especially intubated most of this time. So now we have to work on movement. Getting him in positions he has not been in, working on balance vestibular, proprioceptive, and kenesthetic awareness.

Stable day! Sapository still to help him poop. Hopefully he will do it on his own soon!

Maybe once we are off the morphine!

Sat at 100 spo2 99% of the day, I don’t think he had a real desat even once,  several times his spo2 went low when he was wiggly but the sat probe had a poor signal.

He wakes up later in the evening after dinner and does not want to go to sleep. Takes us a long time to get him to settle down and sleep.

Nurse we have not had,  but from 2nd floor NICU, doing a rotation over here.

We finally get RT to fall asleep and start heading out and the nurse is giving passdown 3 hours into her shift to another nurse that has not had him.

In PEDS there seems to be more partial shifts that nurses take, less continuity of care, but atleast more stable patients!

Several NICU and PICU nurses and respiratory therapists have stopped by today and yesterday! Great to see them,  they all still think about RT!

We don’t get back to hotel till almost midnight.

Keep up the awesome work RT, everyone is impressed by you!

So much love!