Enter NICU, weight on the board is 2300.
Nurse today is one RT has had a few times, she tells us he had a rougher night. More Brady desat events with apnea….
I thought we were through this, he didn’t heve brady desats for like two days now. Just desat events….
What is causing the bradycardia? Is it his Theofalin level, electrolytes, the change to his levabuterol dosage? Who know. No one, or hopefully we wouldn’t have this issue.
Why starting after we left for the night?
He tends to have more brady events at night it seems?
Maybe rainout? Colder at night, cause more condensation.. ( rainout is Condensation build up in his vent tube that then drips down his nose. Can’t be fun. )
He is on 26% oxygen.
We do cares. He is a little warm and sweaty. We remove one layer of blankets, sounds like he was running slightly cold last night too. Just pee. He gets a brake from his nasal mask then back to nasal mask. They don’t want to do nasal prongs right now.
We swaddle him up and I get to hold him on a skin to skin chair just like holding a normal wrapped up baby, but smaller, with wires connected to him and a breathing mask and tube.
It’s nice to hold him and look at his face, give him his binky while holding him.
He desats a few times but brings himself back up. Then one larger one. Bumped up to 28% oxygen. He starts creeping back too low on his spo2. I decide he must be uncomfortable or harder for him to breathe in th his position so we put him back, I don’t want to just keep creeping up on his oxygen needs.
He stays relaxed and liked being held, continues to sleep when we put him back.
We go and get a quick lunch.
Back to NUCU.
We have a talk with the Dr. That is on today. It’s the one that was there for his delivery. We haven’t had him since before heart surgery.
He talked to pulmanologist this morning, the plan is to slowly wean his steroid, then if he tolerates that. Wean his CPAP level by one every few days as tolerated. Well I’m glad the plan is to move slow!
He says he is happy that he is only on a CPAP of 8 considering everything he has been through. Glad we are staying below 30% oxygen too!
1400. Temp, slightly cold, Cares, skin to skin time on mom.
Goes well. He calms down quick and gets some good rest. He wiggles a couple times, knocks off his nasal mask so I help get it back on him.
He pulls his OG out too far, out it comes. I guess he will get a new one after skin to skin.
1700 put him back,temp 36.9, diaper just pee.
Binky time. Then let him rest.
Dinner then back to NICU.
Nurse tells us at 1745 about 15 minutes after we left new had a large brady desat.
So all day he doesn’t do one, we leave and he does it.
Shift change, a primary!
1930 mom notices some water add it drops down his mask. Shortly after his respiration rate decreases, and he doesbt breathe briefly. His heart rate dips and his spo2 drops.
Heart rate down to 80, spo2 down to 74 before his oxygen is turned up and the nurse gives him stimulation to get him to breathe and bring his heart rate up.
He comes back up fairly quick.
Weaned his oxygen down again. 26%
Well maybe that is the cause of the brady desats last night? We can hope its due to poor design rather than RT having medical issues. I feel like it would not be that hard to design a piece that removes the larger moisture droplets to not shoot them down the patient’s airway. I have several ideas how.
Cares. Temp, diaper. Binky time. Respiratory therapist tonight is one of the ones that has had him lots. Swap to nasal prongs.
Respiratory therapist put a towel over his ventilator tubes to try and combat the condensation. She agreed with a previous respiraroty therapist who said often times the locations near window temperature fluctuates more and can cause more rainout, and at night it happens more too. We had already used her advice by keeping both blinds shut.
Hopefully it’s something like this causing his events.
The nurse and respiratory therapist mention again how amazing it is he does not have an oral aversion, how much he loves his binky, swabs, mouth cleaning and suctioning.
They also note, he kind of acts like he isn’t a preemie with the way he reacts to what happens to him. I have nothing to compare him to so I couldent say. I just know he is one tough dude.
After cares 23%!
Tomorrow is another eye exam, eye drops ordered for 0630. That means the exam will be around 0730. We need to be there before then.
…..
I really hope the hospitals generator works great! Kind of Scared, not sure how his oxen is supplied through the wall hook ups, I imagine it is all on back up though… ill ask tomorrow. Hopefully the window right next to RT’s bed on the 6th floor is built strong. I have a feeling we might stay bedside 24/7 if the weather gets horrible here.
I’ll double check all his equipment is plugged into red outlets tomorrow. Supposedly all the red ones are on the backup generator… hopefully it’s wired correctly.
I imagine few places are as safe as he is… right?
This is not what we need. How do you prep for a massive storm with a baby in the hospital, while living out of a suitcase…..
The action is expected to start on Thursday, when a strong Pacific cyclone approaches the coast. That could whip up winds that gust up to 57 mph along the coast and over portions of Seattle.
“Expect a lot of power failures,” Mass said. “Be prepared.”
Glad we have some rain jackets and boots that our friends generously brought down for us! Not sure if we need to go stock up on food and water because restaurants will be closed…
Maybe we will try and get a sleep room at the hospital to be closer if things get crazy.
Hopefully it dies down before it hits or media is just blowing it out of proportion to sensationalize it.
Hopefull for less brady cardiac events tonight please!
Love you handsome little man!
Preemie Pop 